We’re lucky enough to have a celebrity guest blog today from none other than my wife (Clay’s Mom, typing partner and number one fan) Roe DeLuca, who is holding down the fort in more ways than one while I’m off in exotic lands—well, Connecticut—at another speaking engagement.
If you’ve been reading “Life With Clay,” you know that supported typing has opened up Clay’s world—and it’s giving us snippets of insight into a young man who is intelligent, aware and soulful.
For instance, when Larry was having difficulty with providing the right resistance when supporting Clay in typing, Clay told him to “keep it real.”
When our dog Maverick passed away, Clay told us that Maverick had been in pain “since Sunday” because “I can feel it.”
Other times, the message is strictly communicative. Last night, for instance, Clay was upstairs in his room watching Toy Story for the 500th time, when he suddenly started crying. I fully expected it to be one of his headaches, but he informed me otherwise: “A tag is bothering my neck.”
The other day was a different story. It was one of those “sad days” Clay sometimes refers to, highlighted by an afternoon of intermittent crying and frustration. Advil helped take the edge off, but it wasn’t enough to bring back the dude who laughs every time I turn “Marvin K. Mooney Will You Please Go Now?” into a rap song.
I felt so helpless, watching my poor son struggle and unable to do anything about it. Out of frustration, I grabbed the keyboard and played the robotic voice for him: “What can I do to help you, Clay?”
His answer took my breath away. “Stay strong,” he typed back.
I stood there mouth agape while Clay galloped off to his bedroom. In just two words, my so-called non-verbal son said more than most people twice or even four times his age. Clay is painfully aware that he sometimes doesn’t make life easy for those around him. But if you take the time to really think about it, you will see that this is just a small part of him. Clay has taught me so much more than patience; with his quiet presence, he has shown me a deep love that I never thought imaginable.
It was clear to me that I needed Clay’s wisdom as a constant reminder. A quick search on Google, and I found a lovely silver bracelet that is perfect.
So Lar, not only do you have a blog posting but a Christmas present suggestion!